Wait and See...

I'm not certain how to start this post because I'm feeling a little lost at the moment. When Michaela was 18 months old we discovered a lump on her face. We did the normal stuff took her to the doctor, gave her the medicine they told us to give her but regardless of what we did the lump wouldn't go away and got bigger and uglier not to mention we started discovering more lumps in her neck. As we progressed through this I got more and more ANGRY at the doctors because they didn't seem to be taking this THING seriously! We did a CBC and it came back normal and yet my perfectly healthy 18 month old had this horrible looking lump on her face that had at that point begun to change colors! Finally I told the doctors that we'd had enough that they needed to do something more than give me an antibiotic to give her. Within a week of seeing the ENT the first time she was at the childrens hospital having her lymph node removed from her face and left open to drain the INFECTED material from her body! Just after her 2nd birthday we were back at the hospital to have another surgery to remove the other lump that they had left to "see" if it would drain removed.
Fast forward to this morning and imagine the horror I went through hearing my now 4 year old tell me "mommy I have some bumps on my neck" as she lay in her bed while I was getting her big sister ready for school. It was like the world stopped, I tried to calmly walk into her room and have her show me the lumps when really all I wanted to do was cry. The kids and I all took Alyssa to school and when I got home I began calling the doctor she had seen in Vancouver for medical records to be transferred and the new doctor here in Spokane to get an appointment. All the while hoping it was nothing but knowing that I was just kidding myself. I was able to get her into the doctor early this morning and we've started on the road of antibiotics again to hold off any infection until we can figure this thing out. The doctor said it was VERY rare for any child her age to have this going on once let alone twice and that we would probably need a CT scan but he wasn't sure yet. I'm scared and worried; not only did the doctor find the bumps she had shown me but he found additional ones in her neck. As I sat waiting for our turn at the doctors office I remembered how the girl who couldn't hold still has begun falling asleep on short car rides and how I've had to adjust the elastic on her jeans again because they were getting too big. This fall we celebrated because Michaela weighed 43lbs at her checkup, today she weighed 39lbs. Right now we sit and wait while she takes her medicine and head back to the doctor on Friday to see if there's any change and we go from there.